Peterborough Blogs
GoFundMe Created To Help Young Girl Diagnosed With B-Cell Leukemia Days After Fourth Birthday
/It may not be the best present for four-year-old Ellie Bell as she was diagnosed with B-Cell leukemia shortly after her fourth birthday but a GoFundMe was set up to aid the family.
Bell received the diagnosis four days after her fourth birthday (Dec. 12). She was release from the hospital after spending 10 days according to a Facebook post from her mother.
It began as what the family thought was a high fever and Bell was taken to the Peterborough Regional Health Centre. She was eventually taken to SickKids Hospital on the same day for several tests including blood work, x-rays and ultrasounds.
The second day, Bell had to be put on a feeding tube while already on five days with no food or fluids according to the GoFundMe page. It was revealed that she respiratory syncytial virus, urinary tract infection and rhinovirus resulting in a a prescription of heavy antibiotics and receiving a blood transfusion (which gradually helped her condition).
On Bell’s 10th and final day at the hospital — which was her birthday — she received a bone marrow aspiration and biopsy because her cell line numbers were still low as stated in the GoFundMe. She was released from the hospital that day. During that time, Bell’s mother had openly asked friends and family to send videos wishing her a happy birthday.
Bell was readmitted on Thursday for a lumbar puncture and her first round of chemotherapy. I was administrated directly into her spine to prevent the cells from travelling to her spinal fluid and brain. A second round of chemotherapy on the same day.
On Friday, Bell will ‘receive a port line inserted in her chest to prevent two years worth of needle pokes’ according to Natalie Campbell, Bell’s great aunt.
Bell began junior kindergarten however her treatment will take roughly two to three years and is unable to return to class until the following school year. The parents have taken time off work to care for her during the recovery process.
“Our top priority is making sure Ellie has the love and support she needs to stay strong, as well as getting more answers in the coming weeks to further determine her prognosis,” said Campbell.
The GoFundMe was created by Campbell on Thursday that has already seen short of $5,000 of the $10,000 goal.
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Five Counties Children's Centre Offers Holiday Preparation Tips
/Five Counties Children’s Centre (FCCC) is offering holiday tips for families to make the holidays merry and light.
“Whether celebrating Christmas, Hanukkah, Kwanzaa or Winter Solstice, the holiday season comes with high expectations, changes in routine and extra stimulation that can be overwhelming for some kids,” says Ashley Parsons, FCCC occupational therapist. “As parents and families, it’s important to reduce the stress and anxiety created by the holidays to make it a more enjoyable time for everyone.”
According to FCCC staff, it is not just children on the autism spectrum or with sensory processing issues who can be impacted by the holidays.
“The pandemic has disrupted large gatherings and in-person celebrations, creating a situation where many kids aren’t equipped or don’t know how to socialize or engage in play with others outside their immediate families,” Parsons says.
Preparation involves a plan for success, says FCCC. They suggest the use of calendars to mark events and count down the days and photos/maps/videos as visuals to share with younger family members or children who have communication challenges to help prepare them for who/where you’re visiting.
FCCC also offers the following tips to help prepare your family for the holidays:
Decorate less or do it gradually. While holiday decorations make the season brighter, they can also be disruptive for some kids. Pulling out pictures from previous holiday seasons can help children adjust to what’s planned (if you don’t have photos, take some this year). Having kids involved in decorating can ease the process, as can taking a step-by-step approach to decorating. For instance, set up the tree one day, but wait until the next day before starting to decorate. Once decorations are up, set clear rules about what can and can’t be touched.
Give gifts the right way. Most children get excited over holiday gifts, but for some kids, it can be overwhelming. If a child starts to obsess over a desired gift, find ways to manage their interest. For example, try a ‘five-for-five swap.’ Give your child five stickers that can be exchanged for being able to talk about the gift for a five-minute interval. To help manage holiday gift expectations, make a list with your child of realistic items he or she wants for the holidays. This list can then be shared with family members and friends who can register to purchase one of the desired gifts.
Change for the better isn’t always better. Many children thrive on routine, and the holidays can throw off schedules. Having familiar items on hand can help calm stressful situations. If you are travelling for the holidays, make sure you have a child’s favourite books, toys, games and activities. Rehearse in advance what will happen or what can be expected to also ease children through any change or disruption of routine.
Here’s food for thought. Enjoying a holiday meal with friends or family may not be enjoyable for all kids, especially if they are picky eaters or unlikely to enjoy unfamiliar food that’s on the menu. Some kids may also have allergies or require special diets. Have some of your child’s favourite or familiar foods on hand for dinner, either by bringing it yourself or ensuring some will be served during the holiday meal. If needed, identify a quiet area where your child can go to eat on their own if mealtime with others is too much.
Take a break. Have a plan in case holiday visits or festivities become too overwhelming. Develop a signal that you child can use to say they need a break or want to be on their own. Work with your host to find a pre-determined quiet space for your child to de-stress. Have headphones with songs or stories that your child can wear to calm themselves and drown out surrounding noises.
Dress for success. Ensure your child wears clothing that is familiar and will not cause discomfort if going to a special holiday dinner or event.
Prepare others for what to expect. The holidays are a time to gather with loved ones, so help them to understand your child. Be open and honest. Offer strategies on how they can help reduce anxiety or stress with your child. Help them see that your child may prefer not to be hugged. Share potential triggers that could cause your child to become upset. Stress to loved ones the importance of remaining calm and neutral to avoid outbursts.